His profile on the organization’s website lists his accomplishments as an actor, followed by a description of his work with the organization.
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He was actively involved in research and awareness for the disease following the death of his sister.
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Saget was a board member of the Scleroderma Research Foundation, the organization’s website says. Saget Was Actively Involved in the Scleroderma Research Foundation & Wrote a Directed a Film Signs and symptoms vary, depending on which type of scleroderma you have.” But in many people, scleroderma also harms structures beyond the skin, such as blood vessels, internal organs and the digestive tract (systemic scleroderma). “In some people, scleroderma affects only the skin. “There are many different types of scleroderma,” the Mayo Clinic writes. It effects more women than men, and often effects people ages 30 to 50.
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Scleroderma, also called crest disease, is the name for a group of rare diseases that involves the tightening of the skin and connective tissues, according to the Mayo Clinic. The other sweet lady in the picture is our grandmother, Bella Comer. “She died when she was 47 from scleroderma, a disease that I’m part of finding the cure, as a proud board member of the #SclerodermaResearchFoundation – My heart goes out to everyone who has lost someone dear to them. “My sister Gay would’ve been 73 yesterday,” he wrote on January 10, 2020. Saget wrote a tribute to his sister in 2020, around the time of her birthday, sharing a photo of himself with his sister and their grandmother. It may seem silly, but it helped me somehow. Aside from his many creative gifts, he also shared this profound grief. Treatments now include immune suppression to lessen the effects of the disease and specific drugs in more severe cases where organs are affected, according to Wright.Bob Saget spoke openly & poignantly about loss. Symptoms can range from weight loss and joint pain to fatigue, stiffness in the hands and feet, shortness of breath, cough and cold sensitivity.Īnd though there is not yet a cure, research completed over the past several decades has led to more treatment options for patients with scleroderma. The disease is often diagnosed through a combination of a physical examination by a doctor and blood testing. The disease often begins between the ages of 30 and 50, and it can also impact African Americans more severely, according to the Scleroderma Research Foundation.
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Around 80% of people with the disease are women. The type and severity of symptoms varies from person to person.Īlthough scleroderma can affect people of all ages and backgrounds, it is a disease that predominantly impacts women.
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"Bob was so generous, and when someone gives so freely of their time and their talent and their compassion and goodwill, it sets the tone, and others who have that inclination are really ready to join in."Īn autopsy on Bob Saget was performed Monday and while the full results could take months, the sheriff's office is detailing the conditions in which the comedian was found. "We're a very small organization, so individuals can have a huge impact, and Bob was certainly one of those people," Wright said, adding that Saget's generosity inspired donors and researchers to join the cause. Wright, chair of the foundation's research committee, remembered Saget as not just a celebrity advocate for the disease, but as a "rock" who supported every member of the foundation's board and staff and who gave a voice to people living with scleroderma, an autoimmune disease that causes inflammation in the skin and body. "No one should have to suffer as Gay did, which is why I'm committed to finding a cure and a proud board member of the Scleroderma Research Foundation." "My heart goes out to all who have lost a loved one to this disease," Saget wrote. 9, prior to Saget's death, the "Full House" star wrote about his passion for the cause. In a post shared by the foundation on Jan. Jimmy Kimmel took time out at the top of "Jimmy Kimmel Live!" to remember his friend and fellow comedian Bob Saget.